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My Story


I was born with a rare condition called Hypoplastic Left Heart Syndrome, though, at the time, no one knew it. At the age of 4 months, after fierce advocacy from my mom, I was diagnosed with HLHS (in basic terms... half a heart). I was going to need surgery. Not just one…  three were predicted. I didn’t have the predicted three surgeries the doctor spoke of. I instead had a total of 8 major open-heart operations. 


My first operation was at the age of 4 months old. It’s incredible to think that my heart was the size of a walnut. How anyone could cut, stitch, and repair something so small is amazing.  4 days later I went back to the O.R. My odds for survival decreased to grim. They kept fighting, and so did I. I had my third surgery when I was 2. I suffered a stroke and lost all movement on my right side. Yet, it now works just fine.  My fourth surgery was at the age of 4, and my 5th in second grade, making me the first child ever to undergo what is now called the bi-ventricle repair. Heart surgery number 6 was in 8th grade and numbers 7 and 8 were just after my senior year of high school. 

Having grown up with CHD, I know what it’s like to be considered a trailblazer for medical advancement. I, and others like me,  often receive the cutting-edge and at times experimental procedures that go on to become best practice approaches.

Due to my experiences, it has become my mission to raise awareness for both acquired and Congenital Heart disease. It can affect people of any age. I was born with mine, but my father lost his life at the age of 38 to his. I work to instill hope, provide education, and share the advice that I have learned along the way, and have been so grateful to have formed many partnerships with several incredible organizations whose mission aligns with mine. 


Longterm Partnerships

CHD Advocacy & Awareness 


CHD Advocacy Honors:
2019 Maine Go Red For Women Survivor Spokeswoman

2023 Class of Extraordinary Women for the Children's Heart Foundation

Event Hosting:
Kendra Gives Back (Kendra Scott) Fundraising Extravaganza benefitting AHA Maine

AHA Kid's Heart Challenge Heart Hero - 2020

Guest Host for Conquering CHD’s Teen Chat - 2021
Conquering CHD Heart Connection Panelist - 2022

Political Advocacy:

State of Maine Proclamation for CHD Awareness Week - 2021, 2024

Capitol Hill Congenital Heart Futures Reauthorization Advocacy - 2021 

City Proclamation for CHD Awareness Week -  2023, 2024

American Heart Association's You're the Cure Movement - 2024

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